So today I'm officially half way to my big day +100. We had a little scare last night, it was around 12 and I took my temperature and I was 100.7, and a fever for me is 100.4. I called the doctor and he recommended that I come into the urgent care unit at Sloan and be evaluated. So Mindy and I packed our suitcase for about 3 days because we anticipated being admitted. When we arrived there they took my temp and I was 98.0. We kinda thought that our thermometer was acting a little strange but that was great news and meant we weren't going to have to stay. I had some blood cultures done, a urine sample, and a chest x-ray all which came back good.
So Mindy and I got to talking last night about how far we have come in the past 9 months and how big a part God has played in our lives. I know we are always on to the new thing to pray for and I want to take some time to reflect on some moments since I was diagnosed with cancer.
Jan. 29: The day I was diagnosed with AML. My white count was 122,000 normal being 4-6 thousand. I was admitted at Hershey around 8 and that night I had a catheter put into my groin to be able to run my blood out of my body through a machine and back in to kill down my white cells because they were dangerously high. I hated that surgery. The Lord was there with me that day just letting the doctors find this disease in time before it could have killed me.
Maybe 3 days later: I was told I had the worse type of AML, and I would need to have a stem cell transplant in order to live.
The most common death for AML transplant patients is those who can not find a suitable match to have a transplant.
I was able to get my leukemia in remission after my induction chemo which was another huge step, and I praise God for that.
Then there was the dreadful day about 5 weeks after my second round of chemo, when they found masses in my testes, and I was having problems with my eyes that they thought it might have spread to my brain and central nervous system. If you remember reading these days you remember that about a week later I had my testes ultra sounded again and the masses were completely gone. The doctor came in the room and said there is no explanation for this unless you've been praying a lot, which we were, but how cool was it the the Lord took these masses away and made this doctor realize there is a God and he can heal.
May: Mindy for no reason decided to look up other hospitals that do transplants, I say for no reason because at this point Hershey was where we were planning on going and there wasn't really any thoughts of anywhere else. Mindy came across Memorial Sloan Kettering in NY, one of the world's best transplant centers that specializes in AML my specific type of leukemia. God bless her.
June-July: We went through so many ups and downs with a donor, we thought we had one, and then they were no good, and then one backed out, but finally God brought us a 22 yr old male. I mean do you think that is a coincidence that I'm 23 and we were going to go with a 46 yr old woman but waited and this guy came up, and God bless him for joining the registry and going through with donating his stem cells. I thank God so much that I was able to find a match and have a transplant.
We had plenty of ups and downs with my pneumonia and I had to have a lung biopsy before they would clear me to be eligible for a transplant. I was cleared and on July 14 was admitted to MSK for my transplant.
I spent 26 days in the hospital, the fastest that most doctors have ever seen. The average is between 35-50 days, most people we talk to were in for at least 40 days. God was with me the entire time and there were some very hard days at MSK but I had my angel Mindy with me and the Lord.
So today at day +50 I want to give thanks and praise to the Lord for all that he has done for me in the past 9 months.
I wanted to give some advice to everyone who reads this because it's something I have learned since being diagnosed.
Don't sweat the small stuff in life. So many times Mindy and I find ourselves in situations were in the past we would have reacted differently or complained to each other and now, we just shrug it off because it is so insignificant in the grand scheme of life. Don't get upset if you get caught in a traffic jam, don't have any road rage at all, if that person cuts you off, who cares. Maybe your waiting in line and someone cuts right in front of you, who cares it doesn't matter. Just be thankful for everything that God has provided for you and blessed you with. Your health being a main one. Never take days for granted because tomorrow is never promised to anyone.
Stay faithful. I usually close my posts with a pray request, but tonight I am asking you to take a moment to give thanks and praise to God!
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15 comments:
Derrick,
Thank you for summarizng your blessings over the course of the last several months of treatment. You certainly have not walked this path alone. And there is so much power in prayer.
Thank you also for being an inspiration and reminding me to appreciate each day and to not sweat the small stuff. I wrote in another post a while back about losing my Mother to Leukemia. I remember her buying my husband a book titled "Don't sweat the small stuff" a couple of years before we lost her. I do pretty good at reminding myself not to do this, but the human side of me gets caught up in the stresses of everyday life and I have to stop and give myself a good talk and remind myself that what I'm stressing over is trivial in comparison to the trials that many others are dealing with. It's amazing how calming those reminders during stressful moments can be. I've had my share of so much worse that I know in my heart what's trivial and what's not. And unfortunately, I've had recent loss.
Sadly, I lost my 43 year old stepbrother to cancer just 8 days ago. I am once again reminded not to take a day or a loved one for granted and to remember that each day is a blessed gift from God. I pray a lot for those in need and I witness God answering pray often as well. When this happens, I always work to remember to thank God for answering the prayers too.
I will continue to pray for you. And I'm so glad you have had so many answered prayers over the past several months. May they continue on and on. God Bless You!
Leisa
As we read your reflections over the last 50 days a few things come to mind.First of all many of us try to think on what it is like to wake up and not have that first cup of coffee or soda in the morning!
That is what it is like without seeing your blog each day. As your friends talk the first thing they say is "did you read their blog today?"
This is how you touch us each day!
The second, in reading the past history the 2 constant things are God.......and that angel next to you! You have been sent an Angel and we are thankful! She is such a person we all cannot do without.If Mindy could only feal the happiness she has given all of us!
Thank you Mindy and may God bless you.
The Harmes Family
Derrick,
Wow! I am still crying. Reading your blog is a part of my morning devotions, and many times touches my heart more. Today's blog will remain in my mind forever, especially the last paragraph. You and Mindy are an inspiration to us all. God is guiding your path. Much love and prayers!
Summers'
you have definitely had a roller coaster of a journey the past months! you and mindy have continued to persevere! thinking of you often.
<3 Sanders
dear derrick and mindy,
what a beautiful entry in your blog!!! being thankful in all situations is hard but i believe that you have accomplished just that which is so amazing!! it is true... look at how far you have come and how faithful God has been!! we all need to remember to not sweat the small stuff... because so much of life is the small stuff and we should never, ever, ever take anything for granted!! you guys are such an inspiration to so many people!! you are living one of my favorite scriptures: II Thess. 5:16-18
God bless you two and we love you both, mike and nancy and family
Its so wonderful to hear that everything is going well! You both are truely amazing people. We're always thinking of you! With love, The Weaver Family
Hey Derrick and Mindy,
Incredible blessings God has given you two! Amen. I am currently reading Purpose Driven Life, finding God's love again. I just started it but today was about how life on earth is temporary and that we should be preparing for eternity in Heaven...how life on earth is a test and a trust. Look how many tests God has put you through and how many gifts he has entrusted with. He can be nothing but pleased. Thank you for sharing all you have learned with everyone. You are a light to God's love. "so we fix our eyes not on what is seen, but on what is unseen. For what is seen is only temporary but what is unseen is eternal." 2 Corinthians 4:18
Lots of love
Beth Horning
Derrick and Mindy:
As with the rest of the posters, it is inspiring to read your blog daily. I just returned home from a Women of Faith Conference. WOW! It was such an emotional weekend, and many times I thought of you and thanked God for his blessing on you. As one of the speakers said, "Let there be light''. Blessings to both of you,
Love The Dickersheids
Derrick,
This morning I read your blog from work and it was so touching that I couldn't hold back the "gift of tears". I've come to the conclusion that they are indeed a gift because so many of my co-workers walked in while I was patting my eyes dry, and blowing my nose. Out of concern each one asked me if I was all right. My reply? "I just read the summary that Derrick Dull wrote about his illness". I'm sure these tears have prompted my co-workers to read your summary. Your words of inspiration will change lives.
It's so important that others see and hear your message of thanks to your family, friends, and above all God.
Thank you and God bless you.
Terry Ricca
derrick
wow!! wow!! wow!! each and every time i read your blog i am blown away. God has spoken through you so many times throughout this illness. i know it has to be him because your message is so profound and it leaves me with goose bumps. i have to ask-- before your illness i,m sure you were a man of faith, but do you feel that your words come from above??? i also am one of the faithful, but i wonder if the words would come to me as they certianly have to you??? could you quote verses and prayer as beautifully and heartpounding as now??
well enough questions, may God bless and keep you in his peace.
Derrick, Mindy
WOW, Terri Ricca was correct about
her tears leading co-workers to read of your faith, love for Mindy,
her love for you. GOD knows us so
well and he has picked you Derrick
to be such a witness to us. My grandfather was a pastor,he always
talked about people GOD would pick
and you are one of those very, very
special people. I thank GOD for you
both, the Love you have for GOD,
and each other just shines in your
words. I will be taking copies of this to my church on Sunday, you
are always asked about, how things
are going. Being a cancer survior
makes this even more special to me.
Love and Prayers, Bev ENB co-worker
What a great blog. We are so impressed with your faith and will continue to thank God for answered prayers. Great advise to live by. Thanks
Love,
The Highfield's
Derrick,
Your last post was simply amazing!!! I try to teach my classes some lessons in this thing called "life". You have done it so much better than I ever will AND you have taught soooo many people this valuable lesson. "Don't sweat the small stuff", sometimes don't the medium or large stuff. God has us right where he wants us. The two of you are on the right track. Keep it going. FIGHT ON!!
Lenny
Mr. H
ps Boy did those Trojans put a whoopin' on the buckeyes
Congrats on 50 days, Derrick! Time is racing by. . . . Keep up the amazing work. :)
Hey Guys!
I know it's been a couple days since you made this post and I re-read it every day. Last night Four Seasons held their annual Make-A-Wish Golf Outing. We had the honor of having the family attend who was the 1000th receipant of a Make-A-Wish wish in the Lancaster County Chapter. I spent the whole dinner standing the back just holding back tears because of how fortunate we have all been over the years to have the strength and the means to help out this charity, but also to know the ups and downs that this family has gone through.
I wanted to call last night, but I couldn't and still can't find the right words to say. You two are more than amazing. Lenny is right in saying that God has us right where he wants us. (Oh and by the way, I know I learned a lesson or two in his classroom! Mainly not to fall asleep while he's talking) I've also learned to take everything in stride and to trust that this is all part of the bigger picture. I'm still working on sweating some of the small stuff because in the moment it seems to be pretty huge, but I think that's with everyone.
Thank you for sharing your journey with us and for helping everyone understand the ups, downs, twists, turns and surprises around every corner.
Ranae
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